CLEFT REVIEW

Lili seen the cleft team on 8th october to find out a date for her next surgery instead its been put off until her next review in June as Lili sticks her fingers in her mouth when she becomes shy and this could cause the repair to come away so now we need to get her out of the habit before the review

CELEBRITIES

Please let me know of any other celebs past or present I may of missed.

James Hooton better known as Sam Dingle in Emmerdale.

Stacey Keach better known as Warden Henry Pope in Prison Break.

Joaquin Phoenix played Commodus in Gladiator.

Carol Vorderman is a huge part of CLAPA as she is patron as her brother was born with a cleft.

Cheech Marin best known from Cheech and Chong or the voice of Banzai in the Lion King films.

Carmit Bachar part of the Pussycat Dolls and as a dancer in many well-known films such as 13 going on 30 and Along came Polly.

Peyton Manning American football quaterback for Indianapolis Colts.

Tom Burke plays Bluey in Donkey Punch and Jack in the TV series Casanova.

Rosamund Hanson plays Smell in This is England.

Johnny Whitworth plays ATF Agent Jake Berkeley in CSI:Miami

TIME FOR SCHOOL

Lili started school on 9th september. She was that excited to go she was up at 7am dressed face washed hair brushed and raring to go by 7.15 i had to make her have some toast and watch some cartoons until it was time to go. We got to school took her bag and coat off hung them up i asked for a kiss and cuddle which i got and she wandered off im stood looking as if to say what do i do now ive just been ditched theres me expecting her cling on and cry. i walked home wondering what im going to do for 2 and a half hours.

CLEFT AWARENESS WEEK

I held a funday on 11th may in aid of cleft awareness week, we got rained on it was an awful day so not many people came but we did make £48 which was good thank goodness the rain stopped in time for our special guests.

LILIS SECOND SPEECH ASSESSMENT

Lili done well with her speech assessment she doesnt speak nasally much shes started to bring her tongue forward when she speaks so she doesnt use as many back sounds for front sounds anymore she just needs to work on her ffff, sssss, and shhh sounds as she doesnt use the long blowing sounds much and she struggles with her b d and p sounds as she cant get the lip motion. she isnt that far behind kids of her age in terms of speech so for the moment she doesnt need any speech therapy, but shes been referred to the local speech therapists so that its in place for when shes started school and may need it. I'm really proud with her and pleased that the hard work as paid off.

pictures

 4 and a half weeks post lip op

second palate repair

28th january 2013 - sonnies 4 months old and has had his little lip repaired 9am he went to theatre got back at 11.30 poor thing ive never heard him seriously cry until then 4 weeks on hes healed lovely and theres barely anything to notice tiniest pink line ever

lilis 2 and a half and had a second hard palate repair supposed to go to theatre between 11 and 12 didnt get there until after 2 nurse came round about 5.30 for me to collect her walked into recovery to hear lili demanding a drink of juice they tried to give her a cup of water which she threw across the floor got back to our room gave her a cup of juice huge noisy gulps and after a 20 minute sleep a huge bowl of spagetti hoops and a cup of juice she was back to her naughty self unfortunately 5 days later lilis mouth bled and bled which said her palate had started coming away 2 nights in hospital to see the surgeon just to be sent home 4 weeks on lili is finally back to herself finally out of pain eating semi normally soft diet sort of gone to bits and the fact she says im hungry feed me every 10 minutes means her appetite is better now than its ever been lili has 3 holes that i can see which means more surgery but hopefully the surgeon can use whats there without compromising the rest of her mouth or using skin grafts or artifical skin ideally but ill go with whats best for lili i hope next time goes better with no complications