Some of the links posted are made by cleft charities. Cleft lips and/or palates are thought to be rare occurrences, in the UK the number stands at 1 in 700 which is around 1000 children each year. I know that countries such as the UK and America have amazing health care systems. But alot of countries don't, most family's can save all month and still not be able to eat ok for a week. Never mind travel and pay for health care for a condition so easily fixed. Charities such as The Smile Train and Operation Smile fundraise so that children and adults alike can have the surgery they need to survive and thrive.
https://www2.smiletrain.org.uk/powerofasmile/donate-now-i/
http://www.operationsmile.org.uk/
http://www.viralnova.com/smile-first-time/
The above link shows a Childs cleft lip transformation thanks to Operation Smile.
https://m.facebook.com/?_rdr#!/MyNameIsLentil?slog=405&seq=854598052&rk=5&fbtype=274
http://www.viralnova.com/lentil-the-special-needs-dog
The above 2 links are about a French bulldog who was born with a cleft palate.
http://m.youtube.com/watch?v=q1lueFu5TZI
The above link shows what a difference fundraising for The Smile Train can make.
http://m.youtube.com/watch?v=nDl75-FmZfo
the above link is about a child called Christian Buchanan
Tuesday, 16 September 2014
Wednesday, 3 September 2014
Happy 4th Birthday Baby Girl
Monday 1st September was Lilis 4th birthday. She had a tea party the day before with her cousins and friend, and she was totally surprised by the surprise her dad and I got her a CAT!
Wednesday, 5 March 2014
LOOKING BACK
Its unbelievable that 3 years ago in 15 days time that is, Lili finally had her first cleft surgery. All the waiting and anxiety was over, and i realised exactly what other parents had warned me about. I feel now that i can talk about my feelings about this surgery although most people would raise their eyebrows at the fact im being open dispite the fact that its the truth and alot of parents have felt the same even if they denied it to others. I hated the fact that i allowed Lili to have the surgery and i hated the baby that Lili became because of the surgery and i hated the surgery itself. I hated that i allowed the surgery to happen because it was to make her look "more normal" and she looked normal to me i loved her wide smile and 3 years on i desperately miss it. I hate the surgery its self because she didn't look like my baby anymore, 3 years on shes become her own person shes taken on actual features of both me and her dad aswell as extended family and shes got her own features too. And i hated the baby that Lili became because of the surgery because id grown to enjoy her sleeping through, the fact she almost never cried, Lili enjoyed sitting on her own and playing allowing me to do things on my own. After the surgery she cried almost non-stop i wasn't able to do a thing without her being on my hip and she was up and down every other hour. And it wasn't just after the surgery and because she was in pain it continued long after even now 3 years on im unable to lift a finger with her knowing and im not exaggerating. Although she has finally grew out of crying non-stop which is a relief even if it has changed to some rather annoying questions of where are you going and what are you doing if i so much as fidget.
Monday, 28 October 2013
CLEFT REVIEW
Lili seen the cleft team on 8th october to find out a date for her next surgery instead its been put off until her next review in June as Lili sticks her fingers in her mouth when she becomes shy and this could cause the repair to come away so now we need to get her out of the habit before the review
Wednesday, 2 October 2013
CELEBRITIES
Please let me know of any other celebs past or present I may of missed.
Stacey Keach better known as Warden Henry Pope in Prison Break.
Joaquin Phoenix played Commodus in Gladiator.
Carol Vorderman is a huge part of CLAPA as she is patron as her brother was born with a cleft.
Cheech Marin best known from Cheech and Chong or the voice of Banzai in the Lion King films.
Carmit Bachar part of the Pussycat Dolls and as a dancer in many well-known films such as 13 going on 30 and Along came Polly.
Peyton Manning American football quaterback for Indianapolis Colts.
Tom Burke plays Bluey in Donkey Punch and Jack in the TV series Casanova.
Rosamund Hanson plays Smell in This is England.
Johnny Whitworth plays ATF Agent Jake Berkeley in CSI:Miami
Sunday, 22 September 2013
TIME FOR SCHOOL
Lili started school on 9th september. She was that excited to go she was up at 7am dressed face washed hair brushed and raring to go by 7.15 i had to make her have some toast and watch some cartoons until it was time to go. We got to school took her bag and coat off hung them up i asked for a kiss and cuddle which i got and she wandered off im stood looking as if to say what do i do now ive just been ditched theres me expecting her cling on and cry. i walked home wondering what im going to do for 2 and a half hours.
CLEFT AWARENESS WEEK
I held a funday on 11th may in aid of cleft awareness week, we got rained on it was an awful day so not many people came but we did make £48 which was good thank goodness the rain stopped in time for our special guests.
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